Not one dose missed

Giving myself an injection every day is still one of the most difficult parts of my day. I’ve learned that a lifelong needle phobia doesn’t disappear just because you’re forced to confront it daily. And so, late last year, it became easy to procrastinate and occasionally skip. But I could feel the difference as my…

Sweet pictures from Mama

My migraine still wouldn’t quit today, so Mama took pictures of the flowers in our garden. She sent them to me in an email, telling me she hoped I felt better. It was especially sweet, because our Morning Glory FINALLY bloomed! But I couldn’t go outside to see it because the light was too painful.…

Soothing, cold air

I’ve spent the day dragging myself between bed and the bathroom floor. A migraine and overpowering nausea took control of my day. But when the sun went down, Mama suggested we take in some cold air, and it was the best I felt all day. Today’s #OneGoodThing was breathing in the soothing, cold, evening air in our…

Ready for the sequel

After our exciting week, today was a happily horizontal day in our home. Plus, I’m pretty wiped out from yesterday’s treatment. This afternoon, Mama and I re-watched the movie “Mamma Mia!” We had seen it together in the theater when it was first released. We also enjoyed the musical together on Broadway about 15 years…

Bright spots on infusion day

Today was infusion day for me. It’s been nearly a year since I started this chemotherapy treatment for my Crohn’s Disease, and it has been making a big difference in my chronic GI symptoms. I was thrilled to have Nurse Tammy take care of me today, because she got the IV in on the first…

Going to bed early

We have a big, exciting weekend ahead of us, but I”m totally exhausted already. So tonight I’m posting a little earlier than I often do because I’m going to bed early! Today’s #OneGoodThing is an early night! Day 199 of 365. And Day 930 in a row (here’s the first 366 & the following 365)!  1 year ago today: Roses filling our…

New pharmacy and lab

Our hospital recently opened a new building with medical offices, imaging, lab, and pharmacy — and it is around the corner from our home. Today was my first trip there; it took me about four minutes to get from our driveway to the new building. Parking was easy (a massive improvement over all the other local…