A down day

Fireworks have been going off behind my right eye all day. If it weren’t so painful, it might be pretty. Like a kaleidoscope. But no, today has been awful. My head is still killing me and making it hard to see any good in the day. But I am grateful for the ice water that…

13 fewer pills to swallow

Since I was diagnosed with Crohn’s Disease in May, I’ve been taking about 40 pills a day to try to get my symptoms under control. Thankfully, some of the pills are dissolvable or chewable, but I’m still left with about 25 to swallow. I was recently able to taper off the awful prednisone completely. And…

Post-celebratory rest

After such a busy day celebrating Mama’s big birthday, we crashed today. We were beyond wiped out from the heat and activity and just needed a day of rest. Today’s #OneGoodThing was having a day free from appointments so that we could rest and recuperate! Day 275 of 365. And Day 641 in a row! 1 year…

Pred no more!

Today was my first day off of prednisone since my Crohn’s diagnosis in May. This is major! Though this horrible steroid was necessary in an effort to control my Crohn’s flare, it also caused a long list of other problems — from terrible joint pain to difficulty swallowing to an infection in my esophagus and…

Triple success

I had my third IV infusion treatment for my Crohn’s Disease today. It was the final of my loading doses and it went surprisingly well. The awesome nurse, Cindy, warmed up my arm and was able to find a vein on the first try — a miracle for my crappy veins! Then I got home…

A single needle stick

Since my Crohn’s flare is not yet under control despite tons of medications, my GI doctor ordered some tests to investigate. At my CT scan today, the nurse was able to insert my IV on the first go! This is major because I’ve had terrible luck with several veins collapsing painfully in the past. It’s…

Paisley cuddles

A terrible throbbing behind my eye woke me up this morning. A migraine overtook me; and the pain and nausea made my day miserable. Our sweet dog Paisley was the bright spot as she regularly checked in on me. Today’s #OneGoodThing was Paisley cuddles. Day 248 of 365. And Day 614 in a row! 1 year ago…