Okay to just be

Today’s #OneGoodThing was just being, taking a much-needed rest after my colon had a poor reaction to yesterday’s infusion treatment. I’m ok, just exhausted. Day 123 of 365. And Day 854 in a row (here’s the first 366 & the following 365)! 1 year ago today: No stopping me now 2 years ago today: Elegant volunteers brighten our entry What was your #OneGoodThing today? Please…

Pushing past my limits

Today was originally supposed to be a rest day — after my 6th round of Crohn’s chemo two days ago, that’s all I expected to be able to do. But my plans to fill our fridge with healthy food for Mama just before that appointment were squashed by a bad flare up on Tuesday. I had…

Bone broth to the rescue

Today was one of the worst days I’ve had in a while, having spent the hours of 4 a.m. to noon violently throwing up what felt like the contents of my whole body. My entire day’s plans had to be scrapped while I dragged myself from bed to bathroom and back. I tried ginger ale,…

Remarking on the unremarkable

I managed to snag an ultrasound appointment today by calling the cancellation line at the crack of dawn. I would have otherwise had to wait another week to further investigate why my kidney still hurts after a week on antibiotics. My urologist emailed me this afternoon that my kidney ultrasound was unremarkable. This is frustrating…

So that answered that question…

Mama and I have both been very ill for the last day and a half. It’s unusual for us to be out of commission at the same time, but excruciating headaches struck yesterday shortly after our glorious pedicures. Late this afternoon — after a full 24 hours in bed — Mama and I met in…

Sweet end to the week

I am beyond wiped out; it’s been a long, exhausting week (with a major highlight of our awesome dog door being installed). I wasn’t sure I’d manage to get anything done today. But after checking the fridge, I realized we needed some fresh groceries. Off I went and dragged myself around the store. My reward for such…

Crohn’s chemo #5 complete!

In August, I started low-dose chemotherapy to treat my Crohn’s Disease; and though it is exhausting, it is going well. I was nervous about today’s infusion because I have difficult veins to find and I was pretty sick a couple of weeks ago. Plus, I had a low-grade fever today, so I was worried they’d say I wasn’t…