Our lovely new face masks 

Today we were thrilled to receive a package from an Etsy store we love in Canada: Our beautiful new face masks! I’d ordered one of these pleated, adjustable beauties late last year, and I’ve been wearing it every time I leave the house to try to minimize how often we get sick. They’re way more comfortable to…

Home fried bananas 

We have been craving fried bananas since we had them at a fantastic Burmese restaurant last week, and so tonight I tried to make them at home. Years ago I made tempura bananas at home, but I was trying to avoid breading them tonight. So I found a recipe online and loosely followed it, swapping…

The perfect poem

Tonight I got a text from Mama telling me to check my email. She came across a poem while reading her novel, and she wanted to share it with me. The poem is The Mystery of Pain, and it’s by Emily Dickinson. Today’s #OneGoodThing was receiving the perfect poem from Mama — fitting in so…

Graduating Biofeedback 

Today I finished a series of 12 Biofeedback appointments in an effort to relieve my chronic migraine pain. I was very skeptical at first, but my migraines were so severe that I told my neurologist I’d try anything. At my first Biofeedback session in November, I learned that even when I thought I was relaxed,…

A friend who gets it

The approaching anniversary of my chronic illness diagnosis has had me in a funk lately. It’s brought up a lot for me — ranging everywhere from relief and hope to anger and grief. I’d like to tell you I’ve come so far. And in some ways, I have. I understand my disease better now, but I’ve…

This snuggly face

Today was another resting day in the Nosy Parker home; we’re now into our 3rd week of this damn cold/pneumonia. The increased fatigue and overall misery is starting to make me crazy. Our sweet Paisley has been super cuddly and snuggly through it all — comforting both Mama and me. Today she curled up under…

Back to primary caregiving 

Mama and I have both been sick with a severe cold for about two weeks now. There’s a nasty bug going around that can develop into pneumonia, as mine did a couple day ago. I’m now on an antibiotic and an inhaler so I’m finally starting to improve. Mama, on the other hand, woke up…